My life as a spoonie-from the beginning.
I was 17 years when all my problems first started. I have pretty much stumbled through life, struggling in one way or another with some form of illness. I think my spoonie life first started when I was actually around 2 years old. My mum told me I was under a consultant with suspected precocious puberty. I had to have MRI scans and tests as I was developing breast buds at an early age. This fortunately turned out to not be the case and I was discharged. However, looking back I think this is where my issues started, because precocious puberty is linked with the adrenal glands and pituitary gland, as is autoimmune and thyroid problems.
At around 15 years old, I started getting terrible pains in my tummy. This would mean I would miss going out with my friends and eventually I lost touch with most of friends. I could spend ages on the toilet, or would need to be around a toilet. Long journeys would frighten me, because my anxiety would set in, and as soon as I got in a car, I panicked that I was not near a toilet, and would be embarrassed to ask to stop every few miles.
Eventually I was diagnosed with IBS. Then at 1,7 I ended up being admitted as an emergency patient into A and E, again with terrible stomach pains. Nothing came from this visit, except I was told I was severely anaemic and had to have a 2 pint blood transfusion! I was also told I had a virus in blood similar to Myalgic encephalomyelitis (ME). The doctors words were “There is nothing we can do about it, you will just have to learn to live with it”.
I have come to realise now, learning to live with it, is a favourite saying of the medical profession.
In November 2014, after battling hyperthyroidism and Graves Disease , which is an autoimmune condition, and my medication (Carbimazole and PTU) not working, I opted to have a Total Thyroidectomy (full removal of my thyroid). I was under the impression that this would be a miracle cure and it would be one pill a day for the rest of my life and BOOM, welcome back life! As you will learn from this my blog Thyroid Girl – this is far from the truth.
After having my TT (total thyroidectomy) , 1 month later I was diagnosed with Gallstones and had to have my gallbladder removed! So back under anaesthetic I went. Two operations in less than 2 months! Two days after this operation, I was in AGONY. I couldn’t move. My stomach had swollen like a football, and I felt so poorly.
I was taken back in again as an emergency, and after a week of antibiotic, painkiller and morphine intravenous drips, I was told I had sepsis, as I had an abscess in one of the “ports” from my gallbladder removal. Back down to operating theatre I went!
3rd operation in 2.5 months! I was starting to feel like the game “Operation!”
Then most recently, I have suffered with aches and pains in my muscles and joints and have been referred to a rheumatologist. Where I was diagnosed with Fibromyalgia!
This has been my life for as long as I can remember, and it was only when I read the concept of The spoon theory that I really understood that there are others out there that suffer with invisible illnesses like me. So I started my blog Thyroid Girl so that I could share my story, and hopefully it might help someone who is also going through similar problems to me.
Us Spoonies have to stick together!
I’m 29 years old. I’m a fully qualified Dental Nurse. I live with my partner of 7 years and my mum at the moment and my cat Mia.
Email – firstname.lastname@example.org
Blog – www.thyroidgirl.uk